by Kat12 » Tue Jul 07, 2009 6:57 pm
Hi Everyone,
Thanks so much for the prayers and support; I really appreciate it. I'm fine during the day, but I'm having trouble sleeping because as soon as I lay down my mind speeds up.
The thing that really gets me is that we don't have enough doctors here in the North, and the ones we do have are a mixed bag. Some are wonderful, but others probably wouldn't be allowed to practice in areas without such a dire need for doctors.
My Mom saw a doctor on the 9th of April. She told him that she had laryngintis since before Christmas and he blew her off and told her it was nothing, without even checking her or doing tests. So she asked if it could be an infection; he agreed and gave her antibiotics. They didn't work, so she went back, and he blew her off again; said it was nothing...still no tests or anything.
She told him she was a smoker, had smoked since she was a kid (she's 65 now), and asked for an xray at least. He said "If you think you need it". He sent her for the xrays, and when she went in for the results he told her there was a "thickening" in her throat, but it's "nothing".
My Mom asked him to refer her to a throat specialist and he refused; he said "we don't do that at our walk in clinic" (he runs his own walk in clinic; he's the only doctor there).
My Mom told me that he said that if she found the name and number of a specialist willing to see her, that he would then write the referral, but she'd have to find one and call around to see who would look at her. He also told her there were no specialists in town. Well, I couldn't believe it when I heard this; I was certain that my Mom must have misunderstood. I called his office and his receptionist said "No, we don't refer; you have to find someone."
So I did; I found a guy who works here in town...he doesn't live here full time but has an office here. The nurse who works with him, Janice, was really nice; when I explained what was happening she said it sounds serious, especially since my Mom is a smoker. She asked me to have the doctor write "urgent" on the referral form, or else my Mom would have to wait 6-8 months just for a phone call to set up an appointment.
So, I called the original doctor back and spoke with the receptionist. I told her what I was told, and she put me on hold. When she came back she said "He says he'll write the referral but he's refusing to put urgent on it. He says it's NOT urgent, it's nothing."
I told my Mom that the doctor was behaving like an arrogant jerk and that she should go down to the ER for a second opinion. She wouldn't though; she believed him when he said it was nothing. It took me, my brother, and my Aunt over a month to convince her to go to the ER, and the only reason she did go is that she was starting to cough and the original doctor was on holidays. Or else she would have gone back to see him again.
Well, the doctor at the ER asked my Mom what the results of her bloodwork had been, and my Mom told him that the original doctor hadn't sent her for bloodwork. He was outraged. He examined her, sent her for bloodwork, and when he got the results he said there was a good chance that it was cancer.
As it happened, Janice (the nurse who works with the specialist) was also working at emerg that day and the emergency doctor asked Janice if she could get my Mom in to see the specialist without waiting for months on end. The specialist was out of town but Janice arranged for my Mom to see him as soon as he got back, within 2 weeks.
My Mom saw the specialist on Monday June 15th, and he sent her for a CAT scan and a biopsy the very next day. That's when it was confirmed that it was cancer, but at that point they thought it was the early stages and that it would be easily treated.
The specialist sent my Mom to Sudbury the following Monday, and the specialists at the cancer clinic there ran more tests and told her it was stage 4 throat cancer, and that she was going to need extremely aggressive radiation treatments for 6 weeks, plus chemo. They pulled out all of her teeth because some had the old fashioned fillings that would have melted with radiation, and the rest were loose and would have fallen out. My poor Mom, who'd believed that first doctor when he said it was "nothing", was in shock over everything and couldn't believe what was happening.
Last week they gave her surgery to insert a feeding tube because the radiation may burn her throat and leave her unable to swallow. The feeding tube became infected on Sunday, but they had to drive to Sudbury before they could go to the hospital to have it looked at because her treatment started yesterday (it's a 4 hour drive to Sudbury). They waited 7 hours before a doctor would see her and prescribe antibiotics.
Despite all of this, when I spoke to my parents last night they were in good spirits. My Mom is a fighter, and she's strong and healthy, except for the cancer. My parents are very close and my Dad is with her every step of the way.
So, we're hoping the treatment will get rid of the cancer and save her voice box so she'll be able to speak again.
I'm sorry to go on like this; I am so angry about that first doctor that I want to tell the world. Instead, I filed a complaint with the college of doctors and they are conducting an investigation. My Mom just has to sign the consent form so they can look at her records first, and i'm still waiting for the forms to arrive in the mail.
That's about it here, I'll let you know how the treatment goes. We're all praying that my Mom will be cured, and we appreciate your prayers very, very much.
Hugs,
Kat